Ethics in Lived Experience Research: Employees of UNSW, South Eastern Sydney Local Health District, Black Dog Institute and NeuRA – Discount Tickets $20
Event description
Employees or staff of Mindgardens member organisations (UNSW, NEURA, Black Dog Institute, and South Eastern Sydney LHD) are able to purchase tickets at a discounted price ($20) using your work email and a discount code: Ethics2025
Introduction to Ethics in Lived Experience Research
Workshop Content
- Overview of the principles of safely involving people with lived experience in research
- Processes for supporting the ethical involvement of people with lived experience
- How to navigate ethical challenges
- Capacity and consent
- Participant safety
- Involving peer workers and peer researchers
- Remuneration
- Working with HREC
A series of ‘ethical challenges’ working examples will be presented which will identify the strengths, challenges and potential options researchers may explore. This exercise will help to explain that there are no ‘black and white answers’ to the ethical challenges, but there are core principles that researchers need to keep in mind (linked back to the principles of safely involving people with lived experience outlined above). Participants will also be encouraged to share the challenges they have faced in relation to these issues and solutions they have developed, as well as any other challenges they may have encountered.
Workshop facilitators
Jo Farmer is a Lived Experience Consultant. Jo’s focus is to work with organisations to build the capability and capacity of their people to put the person back into the system and restore individuals’ and communities’ autonomy and empowerment. Jo’s work prioritises those who have been marginalised through her approach to evaluation and research, with the aim to ensure people are heard, have power, and can find and build community.
For information contact the MindLabs Team at mindlabs@mindgardens.org.au
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Mindgardens Neuroscience Network acknowledges the Traditional Owners of Country throughout Australia and recognises their continuing connection to land, waters and community. We pay our respect to them and their cultures, and to Elders past, present and emerging.
We acknowledge the voices of people with lived experience, their carers, families and kinship groups. We recognise the expertise acquired through living with a mental health, drug and alcohol or neurological disorder and acknowledge those who care for people on their recovery journey. We place lived experience at the heart of all that we do.
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